Congressman Jeff Fortenberry (NE-01) made the following statement today after his historic and groundbreaking Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) was signed into law.
"It's been a long, tough road to this miraculous moment, but ACT for ALS is now the law of the land. With this transformative public policy, we can break through faster for those who have suffered so much," Fortenberry said.
"ACT for ALS represents a monumental shift for those suffering from neurodegenerative conditions. The new law does two main things: it transforms the paradigm of disease research and regulation and creates a new pathway to promising new treatments. It drives the hope." Fortenberry added.
"Thank you to all those in the ALS community who courageously drove the hope that led to this moment. For decades, ALS patients have submitted themselves to tests and trials, therapies and placebos, in accordance with the rules of the current health care policy framework. But progress has been uneven, even debatable, with serious impediments to promising new treatments. Today, America advanced a new way," Fortenberry said.
"I am deeply grateful to Representative Quigley and Senators Coons and Murkowski for their partnership on this groundbreaking legislation and to President Biden for signing ACT for ALS into law," Fortenberry added.