Bennet, Grassley Bill to Improve Care for Kids with Complex Medical Conditions Passes Congress

Statement

Date: April 3, 2019
Location: Washington, DC

This week, bipartisan legislation to improve health outcomes and care coordination for children with complex medical conditions in Medicaid, led by U.S. Senate Finance Committee members Michael Bennet (D-CO) and Chuck Grassley (R-IA), unanimously passed the Senate after passing the House of Representatives last week.

"This legislation will help ease the burdens placed on families of kids with complex medical needs. In finally prioritizing this issue, Congress is ensuring that families will receive the help they need to coordinate multiple appointments and providers for their children," Bennet said. "The ACE Kids Act will help make it possible for Children's Hospital Colorado -- and hospitals like it across the country -- to coordinate care and ensure children with complex medical conditions receive the treatments they need."

"Since the start of Medicaid, more children are surviving life threatening conditions, including prematurity, childhood cancer, and complications associated with Down syndrome," Grassley said. "We can all be grateful for that fact. However, as a result, some of these children have ongoing complex medical needs. On average, these children see 5-6 specialists and up to as many as 20-30 allied health professionals. Parents are often overwhelmed at the responsibility of coordinated that care. The Advancing Care for Exceptional (ACE) Kids Act will reduce the burden on families and caregivers by improving the coordination of medical care for these children. In addition, better coordination of care will reduce emergency room visits and hospitalizations and thereby reduce health care expenditures. Better coordination of care and healthier children is a great prescription."

The outdated fee-for-service health care system has resulted in fragmentation of care for children with medically complex conditions. The Advancing Care for Exceptional (ACE) Kids Act creates an option for states and families to provide improved coordination of care with the promise of better health outcomes.


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